Lets see on Wednesday not only do I get to have my blood drawn but bright and early I get to have yet another Doppler on my left leg!! It's the leg that I have all the trouble with. The most current being the 4 blood clots in it! So we're are checking to see if I have any new clots or if I am just being paranoid. I really hope that I'm being paranoid!! I really don't want to go back into the hospital again. I really should get a laptop so I can blog in the hospital!! For right now the laptop and the blythe dolls can go on my wish list! I'm not really scared to go back into the hospital again. I think I'll just be disappointed. And I told my mom that I'd like her to keep going to work. I really wouldn't want us to get behind in your bills yet again! Just wish me good luck and being clot free! I guess it's better to be safe than sorry! I hope everyone is well!

I am so in love with these Blythe Dolls! I think they are so cute. And I want one really, really badly. I was able to get 2 of the smaller ones. But I do want a 12 inch Blythe someday! I don't know why, I just think it'd be cool to take pictures of it. Which I see so many of, I'm a fan of Blythe art!

My mom got a job! It's gonna be so nice with her money to live on too. It's not easy living on only my disability checks. Things seem to be looking up for us once again. I'm so happy my mom is one of my best friends. She has saved my life like 4 times now! I owe her everything.

Today has been kinda of a blah day. Not feeling allot of energy. That could be the APS. After having it for 11 years I'm still learning about it. I get tired allot, but that could be from my meds or maybe me being lazy. This last time I was put in the hospital they found out that I have diabetes too. I'm just a mess!! I try to deal with everything as it hits me or I think I'd be way overwhelmed. Tomorrow I get to have my blood drawn again. I hope I get to see my new doctor. I want to tell her my leg has been killing me. Even though I keep it up and take all my pills like I'm suppose to, I still have allot of pain. Some days I'd like to be someone else for an hour or two.

It has been such a long time since I've posted. Lets see after my surgery we found out that I had me some cancer. So this past year I do believe I've been kinda depressed. Also my hematologist had put me on injections of the blood thinner lovenox once a day instead of the pills cuz she thought I was having an allergic reaction to them. I was having a headache for a month. So about a year later I was having pain in my right leg, the leg that I've had my past blood clots in. I thought I had pulled a muscle or something because it happened around the time I slipped and smashed my knee into a wall. But as it turns out that wasn't the case. So I went to the ER and they ordered a Doppler of my leg. And I had 3 clots!! I've never had that many clots before. So I was admitted and put on heparin. I stayed in the hospital for all of 5 days. And my hematologist put me on a different injection. Which I was very hesitant about going on. About a week and a half later my leg started to hurt allot again. So I went back to the ER and and another Doppler of the leg. But this time I had the three clots along with a fourth clot as well. But by this time I contacted my general practitioner and requested a referral to see a new hematologist. My first appointment with my new hematologist was in the hospital. She kept me in the hospital for 10 days and put me back on the coumadin. Which I feel better about being on. Even if I have to have blood tests all the time. I'm so disgusted with my old doctor. The hospital doctor did a test to see how well the lovenox was working with me, the same one my old doctor did but sat on for months and months. The ranges which showed it was working well in your body was between .30 and .50 and my level was .10. So for that year it was like I wasn't getting any blood thinners at all!! So I am very glad I have a new doctor. I really like her allot.

As you can imagine lots has happened since my last blog! I had started the provera to help with the complex hyper-plaisa started bleeding again on the 15th of Feb. So I was getting clot's again and all that gross stuff. My mom got real worried around the 22nd or 23rd called my gyno. And made a appt with him on the 24th of Feb. cuz I was still bleeding and having orange sized clots. It wasn't pretty the bathroom looked like someone was killed in it. So we went to the gyno appt and I had bleed in the jeans that I was wearing that day and I was feeling a little light headed. But he did a small exam and said everything was progressing well and explained it more to my mom so she wouldn't freak out so easy. I asked him if I could have a blood test while we where there. Everything was normal except my I.N.R. which was 1.8. In the world of INR's that's considered low and I had to adjust my blood thinners to a higher dose. I kept bleeding and I didn't have much energy to do things. My eyes where sunken in and I had dark rings around them. I was going threw pads every couple of hours, soaking them and lots of times over filling them. When I'd wake up in the mornings I have blood on my p.j.'s on my top sheet, bottom sheet and my blanket. I was getting to the point that I didn't wanna go to sleep at all. If I just moved a bit I'd feel a clot come out, and If it wasn't a clot then I'd feel a gush of blood that didn't stop for a few seconds. Needless to say mom got very worried about me and called my hemotologist and made me a appt for March 3rd. I went to see her and she ordered blood work. Turns out that I had lost 5 pints of blood in one week. I was slowly bleeding to death. I got into the hospital that same day and they started me on the blood right away. The next day it was determined that I wasn't getting better so they ordered 2 more liters of blood. My gyno said that If I didn't get better right away then I would have to have an emergency hysterectomy. Instead of my oral blood thinners they have put me on injections that have to go in my tummy so right now I am considered pre surgical and the shots have helped to slow the bleeding. Thankfully my bleeding started to stop, but before the doctors would let me out I had to have 2 more liters of blood, then I got out late on Monday night.

On Fri. I met the doctor who is going to do my surgery. He is the best at high risk hysterectomy's. I am going to have my hysterectomy on Tues. morning and stay in the hospital until Thurs. or Fri. And they said it might take 6 weeks before I feel more like myself again. This is my first surgery so naturally I am very,very scared. I do not have any children, I would have like to have one but I guess that's too late now. All this traveling to hospital's and home for my mom is so hard. Her boss is being so sweet and letting her have the time off, but that also means she's not getting any money for gas, food, or the bills. So again if anyone can find it in their hearts to donate to us in our desperate time of need, we'd be every so thankful. I have the pay pal account already open and ready for donations, all you would need to do is put in my email Lyonene_5@hotmail.com it would help us out so much right now. My mom is trying to not let me worry about the bills, but I can't help it I don't want things to be shut off! Someone please help us.....

I'm really no good at begging, but if anyone can find it in their hearts to donate to my paypal account. I despertaly need some money to pay my electric bill which is around $100. And I owe a couple of months for the phone bill. I'm just so scared. Please someone help us out. I'm crying myself to sleep at night. I just don't know what to do right now. I think I set the pay pal up to accept credit cards too. Please if anyone reads my blog anymore, Please try to donate any amount to me. My email for the pay pal is Lyonene_5@hotmail.com. Thank you.

I'm stressed out! And stress isn't good for me, or my blood level which right now is 5 times thinner than a normal person's blood! I am every so stressed out because I'm the only one with a income, if you can call it that. But I am thankful for the money I do get. It just doesn't last long. I live with my mother, I know, sometimes I feel like a bum. We moved away from her mentally abusive ex-boyfriend about 10 months ago, and for 7 of those months we lived with mom's best friend whom she's known since before I was born. My mom has a bad back and hasn't worked for about 5 years. And now she's desperately trying to find a job, she's been filling out 16 applications every week, but everywhere she applys they never call her back or just look at her age and overlook her. She is trying so hard to find some work, almost anytype of work. So now things are starting to get turned off and I'm just so upset. I've been crying a lot more. The reason I do not work anymore is because I have two rare blood disorders, that's why I talk about blood levels all the time. I've had 4 blood clots, the first one was ON my birthday. I turned 21 that year. I recently found out that I have a birth defect, its a narrowing of my spin. Fun, fun! So I get to go see lots of doctors, and blood tests, and other types of tests. I also get sick easier because my immune system is all confused. So I've recently set up a pay pal account, so if anyone would like to donate some money to us to help my mom and myself in this hard time, we'd really appreciate it. I can't express enough how hard it is right now, I'm afraid in a few days they will shut off our power. Thank you for listening to me rant, it's just so scary right now. Please any help we would be so thankful for. My email address for the pay pal account is Lyonene_5@hotmail.com , Happy New Year.

Just a short blog to let you know that I'm well and alive! I haven't updated for awhile because we moved, got our own home and I'm ever so happy now. So then we had to get internet and such. I guess we're so far out in the country that we can't get dsl or anything cool or fun or fast internet wise. Yes, we have dial-up! Eek! And then guess what?!??! Our modem went out! @#*&!! But now I bought a modem and someone gave us 2 more! I shall call our computer room, Room Of Modems now! Well I'm gonna take my pills and watch a movie. I'll update my links and hopefully blog more tomorrow! Have a HAPPY NEW YEAR or um try to!